Welcome! The Specific Carbohydrate Diet (SCD) has been used successfully by many people to manage Crohn's disease, Ulcerative Colitis, Irritable Bowel Syndrome, Celiac disease, Chronic Diarrhea, candidiasis, and even autism.
Here are some helpful links to get started:
Elaine Gottschall's original book on the SCD. Originally published in 1994, this book explains the science behind the diet, gives detailed instructions on how to start the SCD, and provides plenty of recipes.
Closely aligned with the Seattle Children's Hospital, this website contains research-based information including videos, recipes, and guides on how to integrate dietary therapy (SCD) with IBD treatment.
With thousands of members, a great source of support for getting started as well as day-to-day questions.
These articles are especially useful for talking with healthcare providers who are not familiar with the diet and would like to read the medical literature.
(January 24th 2019)
Yesterday I spoke to Dr. Samir Kakodkar about the SCD and IBD. Below are some notes related to the conversation.
In the podcast, I mentioned that approximately 20 years ago I had an initial diagnosis of PSC, marked by elevated liver enzymes and a scheduled liver biopsy. My liver enzyme levels returned to normal using the SCD. My doctor had the blood tests redone both at the time of elevated liver enzymes as well as right before the scheduled biopsy, when they normalized. The biopsy was cancelled.
That said, I have had doubts over the years whether the PSC “going away” was a fluke or a one-off, if diet-mediated microbiome changes could help PSC in anyone else. (Years ago, I did talk to another person who had the same experience, with SCD helping PSC.)
What I wanted to point out in the podcast was a case study published this year, 2018. It discussed a 13-year-old girl with ulcerative colitis (UC) and PSC. Both diseases normalized with SCD—remission for the UC and liver enzymes back to normal.
The case can be found below. It’s from the Journal of Pediatric Gastroenterology and Nutrition titled:
PSC is a progressive disease. Statistically, “50% of symptomatic patients do not survive beyond 15 years from diagnosis” [boldface added], unless they have a liver transplant. According to the case study, “there is no effective medical therapy.” The authors of the case study suggest that changing the intestinal microbiome may be a way to treat PSC.
If you’re using the SCD, it’s important to check with a dietician about the nutritional completeness of your diet. All too often people get derailed by over-eating some foods (e.g. nut flour breads, etc) at the expense of others. Also, you may not be getting adequate vitamins and minerals. These nutrients are worth checking, even if you’ve been on the SCD for a while.
Here are some documents you can bring to your dietician and your GI:
There are no official “Stages of the SCD” and this concept can be confusing.
However, it is important to address food texture and levels of fiber. For example, if you are experiencing a flare, well-cooked, softer, and pureed foods may be best. (Talk to your doctor.)
Dr. Kakodkar mentioned this site briefly. It was started in 1996 by Mik Aidt who was soon joined by Mike Simons. Now archived, this site contained comprehensive SCD information.
(Mik, now living in Australia and happily married with 3 children, has been devoting his considerable energy to the issue of climate change )